Eddie Vedder在2023年的西雅图音乐会上为EB研究募集了资金,
Eddie Vedder’s 2023 Seattle concerts, filmed in *Matter of Time*, raised funds for EB research, inspired by personal loss and Springsteen’s advice.
埃迪·韦德尔在2023年10月在西雅图的贝纳罗亚音乐厅举办的充满情感的独奏音乐会,被捕捉到Netflix纪录片"时间问题"中,作为EB研究伙伴关系的筹款活动,该基金支持对表皮溶解牛皮 (EB) 的研究,这是一种罕见的遗传性皮肤疾病.
Eddie Vedder’s emotionally charged solo concerts at Seattle’s Benaroya Hall in October 2023, captured in the Netflix documentary *Matter of Time*, serve as a fundraiser for the EB Research Partnership, which supports research into epidermolysis bullosa (EB), a rare genetic skin disorder.
在布鲁斯·斯普林斯汀(Bruce Springsteen)关于包容脆弱性的建议启发下, 维德(Vedder)表演了一些亲密的歌曲,
Inspired by Bruce Springsteen’s advice to embrace vulnerability, Vedder performed intimate sets featuring songs like “Just Breathe,” blending personal reflection with music.
这部影片将他的表演与受EB影响家庭的故事交织在一起,
The film interweaves his performances with stories from families affected by EB, highlighting the disorder’s impact and ongoing efforts to find a cure.
2010年由Vedder及其妻子Jill共同创立, 非营利组织继续履行个人损失与希望所驱动的使命, 强调同情与长期倡导的力量。
Co-founded by Vedder and his wife Jill in 2010, the nonprofit continues its mission driven by personal loss and hope, emphasizing the power of compassion and long-term advocacy.