Lucknow的 " 2026年罕见疾病日 " 强调了在资金限制和覆盖面差距下改善诊断、获得治疗以及政策改革的迫切需要。 Rare Disease Day 2026 in Lucknow highlighted urgent needs for better diagnosis, treatment access, and policy reform amid funding limits and coverage gaps.

2026年国际罕见疾病日在勒克瑙举行集会、专家会谈和文化活动,由RDIF和SGPGI举办,强调早期诊断、负担得起的治疗和可持续护理的必要性。 International Rare Disease Day 2026 was marked in Lucknow with a rally, expert talks, and cultural events organized by RDIF and SGPGI, highlighting the need for early diagnosis, affordable treatment, and sustainable care. 官员们强调病人的倡导在制定政策方面的作用,同时对印度的Rs表示担忧。 Officials stressed patient advocacy’s role in shaping policy, while concerns were raised over India’s Rs. 50拉克供资上限限制了长期罕见疾病患者获得治疗的机会。 50 lakh funding cap limiting access for long-term rare disease patients. 有些条件仍然被排除在国家政策之外,这促使人们呼吁提供更广泛的支持和包容性保健。 Some conditions remain excluded from the national policy, prompting calls for broader support and inclusive healthcare.