前Little Mix成员Jesy Nelson在她的双胞胎被诊断出患有SMA后,积极倡导英国新生儿SMA筛查。
Jesy Nelson, former Little Mix member, advocates for newborn SMA screening in the UK after her twins were diagnosed with the condition.
前小Mix歌手Jesy Nelson在她早产的双胞胎女儿被诊断为脊椎肌肉萎缩1型后,成为英国SMA的赞助人。
Former Little Mix singer Jesy Nelson has become a patron of SMA UK after her premature twin daughters were diagnosed with spinal muscular atrophy type 1.
这名34岁的年轻人主张在英国新生儿脚跟与脚印测试中进行SMA筛查, 导致超过142 000人签名的请愿书, 可能会引发议会辩论。
The 34-year-old is advocating for SMA screening in the UK’s newborn heel-prick test, leading a petition with over 142,000 signatures that may trigger a parliamentary debate.
她会见了卫生部长Wes Streeting,利用她的平台来提高认识,支持受影响家庭,并促进对稀有遗传疾病的早期发现。
She has met with Health Secretary Wes Streeting and uses her platform to raise awareness, support affected families, and promote early detection for the rare genetic condition.