新的“严重自闭症”诊断旨在更好地为受严重影响的自闭症患者服务,但引发关于耻辱感和资源分配的辩论。
A new "profound autism" diagnosis aims to better serve severely affected autistic individuals but sparks debate over stigma and resource allocation.
对“严重自闭症”的拟议诊断旨在更好地确定最需要支助的自闭症患者——非口头或言语少、智力严重残疾并需要24小时护理的人。
A proposed diagnosis of "profound autism" aims to better identify autistic individuals with the highest support needs—those who are nonverbal or minimally verbal, have significant intellectual disability, and require 24-hour care.
倡导者说,Lancet委员会2021年引进的这一类别将改善估计占自闭症患者约四分之一的群体获得量身定做的服务和研究的机会。
Advocates say the category, introduced in 2021 by the Lancet Commission, would improve access to tailored services and research for a group estimated to make up about a quarter of autistic people.
然而,批评者警告说,这可能使个人蒙受耻辱,或转移对更广泛方面的注意力。
However, critics warn it could stigmatize individuals or divert attention from the broader spectrum.
专家们一致认为,无论诊断标签如何,都必须解决支助和服务方面的系统性差距问题。
Experts agree that systemic gaps in support and services must be addressed regardless of diagnostic labels.