Jesy Nelson请求英国在她双胞胎诊断后,将SMA筛查添加到新生儿测试中。 Jesy Nelson petitions UK to add SMA screening to newborn tests after her twins' diagnosis.

前小Mix歌手Jessy Nelson(Jesy Nelson)提出请愿, 敦促英国将脊椎肌肉萎缩(SMA)纳入常规新生儿筛查, Former Little Mix singer Jesy Nelson has launched a petition urging the UK to include spinal muscular atrophy (SMA) in routine newborn screening, following her twins’ diagnosis with SMA type 1 after a high-risk, premature birth. 这份请愿书已经收集了超过35 000份签名,引发了政府的强制性回应,如果达到10万份,可能会引发议会辩论。 The petition, which has gathered over 35,000 signatures, has triggered a mandatory government response and could lead to a parliamentary debate if it reaches 100,000. Nelson与家人一起在Instagram上旅行, 与卫生部长Wes Streeting会面, 主张通过目前为期五天的脚跟刺脚测试及早发现, 强调及时诊断可大大改善结果。 Nelson, who shared her family’s journey on Instagram and met with Health Secretary Wes Streeting, advocates for early detection through the existing five-day-old heel-prick test, emphasizing that timely diagnosis could significantly improve outcomes. 罕见的遗传状况导致肌肉严重虚弱、呼吸困难和吞咽困难,以及发育迟缓。 The rare genetic condition causes severe muscle weakness, breathing and swallowing difficulties, and developmental delays. 她的倡导活动突显了SMA社区长期以来的呼声,并将在她即将上映的首映视频纪录片* Jesy Nelson:Life After Little Mix* 上播出。 Her advocacy highlights long-standing calls from the SMA community and will be featured in her upcoming Prime Video documentary, *Jesy Nelson: Life After Little Mix*.