一位得克萨斯母亲在儿子诊断后,为受罕见疾病影响的家庭创办了一个非营利性基金。 A Texas mother founded a nonprofit for families affected by rare diseases after her son’s diagnosis.

在德克萨斯州,一位母亲将孩子的罕见疾病诊断转变为一个任务,以支持面临类似挑战的其他家庭,发起一个非营利组织,提供资源、倡导和情感支持。 A mother in Texas has transformed her child’s rare disease diagnosis into a mission to support other families facing similar challenges, launching a nonprofit to provide resources, advocacy, and emotional support. 在她儿子罕见遗传病之旅的启发下,这项倡议旨在改善获得护理的机会,提高对诊断不足的疾病的认识。 The initiative, inspired by her son’s journey with a rare genetic condition, aims to improve access to care and raise awareness about underdiagnosed illnesses.