杰西·尼尔森说她的双胞胎女儿SMA1被医生遗漏了六个月, 敦促英国增加新生儿SMA查. Jesy Nelson says her twin daughters’ SMA1 was missed by doctors until six months, urging the UK to add newborn SMA screening.

前小Mix歌手Jesy Nelson(Jesy Nelson)指出, 她的双胞胎在6个月大时被诊断为脊椎肌肉萎缩1型(SMA1), Former Little Mix singer Jesy Nelson revealed her twin daughters were diagnosed with spinal muscular atrophy type 1 (SMA1) at six months old after her mother noticed they weren’t moving their legs, despite multiple doctor visits where symptoms were missed. 她强调迫切需要早期发现,因为治疗在出生后不久即开始时最为有效。 She emphasized the critical need for early detection, as treatment is most effective when started soon after birth. Nelson曾与卫生部长Wes Streeting会面, 现在主张英国在新生儿筛查方案中增加一个简单的SMA测试, Nelson, who has met with Health Secretary Wes Streeting, is now advocating for the UK to add a simple SMA test to its newborn screening program, a move already standard in most developed countries. 她讲述了她的故事以提高认识,强调当医务专业人员忽视罕见的情况时,父母的直觉至关重要。 She shared her story to raise awareness, stressing that parental intuition can be vital when medical professionals overlook rare conditions.