新的澳大利亚应用程序帮助脑性麻痹患者利用研究支持的评级和真实世界视频找到有效治疗方法。 A new Australian app helps people with cerebral palsy find effective treatments using research-backed ratings and real-world videos.

Miroma项目厂与包括脑麻痹联盟和悉尼大学在内的合作伙伴开发了一个名为cpThrive的新应用程序,提供个性化的循证工具,帮助脑麻痹患者、家庭和临床医生确定有效治疗方法。 A new app called cpThrive, developed by Miroma Project Factory with partners including Cerebral Palsy Alliance and the University of Sydney, offers a personalized, evidence-based tool to help people with cerebral palsy, families, and clinicians identify effective treatments. 该系统使用交通灯系统,将130多种疗法归类为有效、不确定或无效的疗法,并辅以来自该系统项目的研究。 Using a traffic light system, it categorizes over 130 therapies as effective, uncertain, or ineffective, backed by research from the TRANSMIT project. 该应用程序包括真实世界的视频演示、大文本和屏幕阅读器支持等无障碍功能,设计时有CP用户的投入。 The app includes real-world video demonstrations, accessibility features like large text and screen reader support, and is designed with input from users with CP. 通过NHMRC资助和NDIS支持, 在澳大利亚开展一项涉及600个家庭的研究, Funded by the NHMRC and supported by the NDIS, it launches in Australia with a study involving 600 families who will provide feedback every three months to guide improvements. 目标是缩小已经证明的治疗与现实世界护理之间的差距,目前只有大约一半患有CPN的人获得有效治疗。 The goal is to close the gap between proven therapies and real-world care, where only about half of people with CP currently receive effective treatment.