UEA的研究发现, Prader-Willi 病人的兄弟姐妹面临情感紧张, Siblings of Prader-Willi patients face emotional strain but gain resilience with support, UEA study finds.

东安吉利亚大学的一项研究发现,患有Prader-Willi综合症的人的兄弟姐妹往往由于护理需求以及家庭生活中断而承受严重的情感压力、孤独和疲劳。 Siblings of individuals with Prader-Willi syndrome often endure significant emotional stress, loneliness, and fatigue due to caregiving demands and disrupted family life, a University of East Anglia study finds. 尽管支持有限, 但有些人获得了恢复力, 特别是在短暂的休息期. Despite limited support, some gain resilience, especially during brief respite periods. 这项研究以二十年的全球研究为基础,呼吁提供更好的以家庭为中心的资源和包容性办法,承认兄弟姐妹们经常被忽视的需要。 The research, based on two decades of global studies, calls for better family-centered resources and inclusive approaches that recognize siblings’ often-overlooked needs.