13岁的Audrey Tyrrell患有Usher综合症,在失去视力之前,正在跑步体验关键景点。 Thirteen-year-old Audrey Tyrrell, with Usher syndrome, is racing to experience key sights before losing her vision.

艾塞克斯州哈维奇的13岁女童奥丽·泰雷尔 (Audrey Tyrrell) 正在争取在失明之前取得重要的视觉里程碑, Thirteen-year-old Audrey Tyrrell from Harwich, Essex, is racing to experience key visual milestones before losing her sight due to Usher syndrome, a rare genetic condition causing progressive hearing and vision loss. 两年前确诊后，她已经在Eras巡演上看过泰勒·斯威夫特，参观过埃菲尔铁塔，参加了Coldplay的演唱会，还体验过巨石阵和北极光。 Diagnosed two years ago, she has already seen Taylor Swift at the Eras Tour, visited the Eiffel Tower, attended a Coldplay concert, and experienced Stonehenge and the Northern Lights. 她佩戴助听器,擅长舞厅舞蹈,梦想访问罗马和切帕罗尼亚。 She wears hearing aids, has excelled in ballroom dancing, and dreams of visiting Rome and Cephalonia. 她的家庭侧重于在不确定她的时间表的情况下创造持久的记忆。 Her family is focused on creating lasting memories amid uncertainty about her timeline. 公众人物和媒体的关注帮助了家庭应对,凸显了奥德丽的韧性和决心。 Public figures and media attention have helped the family cope, highlighting Audrey’s resilience and determination.