三岁的哈莉·蒂德 （Harleigh Tidd） 是世界上唯一已知的患有三种罕见病的病例，她正在接受临终关怀，只剩下几周的生命。 Three-year-old Harleigh Tidd, the world’s only known case with three rare diseases, is on end-of-life care with weeks to live.

来自英国盖茨海德的三岁的Harleigh Tidd, 是世界上唯一已知患有淋巴球菌病、血清和骨骼畸形的罕见综合症的人, 这使得她的肺从出生开始就充满了液体。 Three-year-old Harleigh Tidd from Gateshead, England, is the only known person in the world with a rare combination of lymphangioleiomyomatosis, chylothorax, and skeletal dysplasia, causing her lungs to fill with fluid since before birth. 她怀孕36周被诊断为36周,由于肺破裂和心脏病流落,在出生时面临13%的存活机会。 Diagnosed at 36 weeks pregnant, she faced a 13% survival chance at birth due to collapsed lungs and a displaced heart. 自那时起,她接受了38次手术,现在接受临终护理,胸口排水,预计持续10周左右。 Since then, she has undergone 38 surgeries and now lives on end-of-life care with a chest drain, expected to last about 10 weeks. 医生确认不存在任何治疗,她的状况是末期的。 Doctors confirm no treatment exists, and her condition is terminal. 她的母亲,Stacie Hammond, 倡导罕见疾病意识, 同时也准备道别。 Her mother, Stacie Hammond, is advocating for rare disease awareness while preparing to say goodbye.