加拿大人敦促为ALS研究和试验准入提供50M美元联邦资金,以避免全球落后。 Canadians urge $50M federal funding for ALS research and trial access to avoid falling behind globally.

与ALS、照顾者和倡导者共同生活的加拿大人正在敦促联邦政府在五年内承诺5 000万美元,用于推进研究和确保全国范围的临床试验。 Canadians living with ALS, caregivers, and advocates are urging the federal government to commit $50 million over five years to advance research and ensure nationwide access to clinical trials. 他们警告说,如果没有立即的投资,加拿大就有可能落后于全球领导人,失去关键的卫生数据,将病人——特别是农村和服务不足地区的病人——排除在拯救生命研究之外。 They warn that without immediate investment, Canada risks falling behind global leaders, losing critical health data, and excluding patients—especially in rural and underserved areas—from life-saving studies. 推力支持扩大国家举措,如CAPTURE和加拿大神经肌肉疾病登记册,目的是加强数据主权和扩大试用机会。 The push supports expanding national initiatives like CAPTURE and the Canadian Neuromuscular Disease Registry, aiming to strengthen data sovereignty and broaden trial access. 由于近4,000名加拿大人受到致命疾病的影响,倡导者们强调,时间是关键,联邦行动对于加拿大在全球ALS创新中继续发挥作用至关重要。 With nearly 4,000 Canadians affected by the fatal disease, advocates stress that time is critical and that federal action is essential to maintain Canada’s role in global ALS innovation. 40多名代表正在会见议员和参议员,推动领导和筹资。 Over 40 delegates are meeting with MPs and senators to push for leadership and funding.