喀拉拉邦发起群众募集资金援助脊椎肌肉萎缩症患者, Kerala launches crowdfunding to aid patients with Spinal Muscular Atrophy, a rare and costly disorder.

喀拉拉邦卫生部长Veena George敦促增加社会对罕见遗传障碍患者,特别是脊椎肌肉萎缩症患者的支持,强调社区和政府援助的必要性。 Kerala's Health Minister Veena George has urged for increased social support for patients with rare genetic disorders, particularly Spinal Muscular Atrophy (SMA), highlighting the need for community and government assistance. 为了帮助支付高额治疗费用, 这笔费用约为每位病人13卢比左右, 国家已启动官方的人群资助计划, To help cover the high treatment costs, which can be around Rs 13 crore per patient, the state has launched an official crowdfunding program. SMA是一种罕见的神经肌肉疾病,影响到行动能力,是印度婴儿死亡的一个重要原因,7 744名婴儿死亡中就有1名是这一疾病造成的。 SMA, a rare neuromuscular condition, affects mobility and is a significant cause of infant mortality in India, with one in 7,744 infant deaths attributed to it.