不列颠哥伦比亚省拒绝为10岁患有Batten病的儿童每年需要的1百万元药品提供资金。 British Columbia denies funding for $1M annual drug needed by 10-year-old with Batten disease.

不列颠哥伦比亚省卫生部长Josie Osborne证实,对10岁的Charley Pollock患Batten病的延长生命的Brineura药物的保险将不再恢复。 British Columbia's Health Minister, Josie Osborne, confirmed that coverage for the life-prolonging drug Brineura, for 10-year-old Charleigh Pollock with Batten disease, will not be reinstated. 该药物每年耗资近100万美元,于6月19日停止使用。 The drug, costing nearly $1 million annually, was discontinued on June 19. 岛屿健康与Charleigh的家人正在进行讨论,探讨私人筹资方案,至少有两项筹资活动正在进行,以帮助支付费用。 Discussions are ongoing between Island Health and Charleigh’s family to explore private funding options, with at least two fundraising drives underway to help cover costs. 如果家庭有能力负担,卫生当局将为药物管理提供设施。 The health authority would provide facilities for drug administration if the family can afford it.