在新德里举行的2024年印度-美国连接RARE首脑会议侧重于全球合作防治罕见疾病。 The 2024 Indo-US Bridging RARE Summit in New Delhi focuses on global collaboration to combat rare diseases.
在新德里举行的2024年印度-美国连接RARE首脑会议,旨在通过注重国际合作、患者参与和孤儿药物试验,将稀有疾病变成罕见疾病。 The 2024 Indo-US Bridging RARE Summit in New Delhi aimed to turn rare diseases into rarely-seen diseases by focusing on international collaboration, patient engagement, and orphan drug trials. 11月16日至18日举行的首脑会议强调了印度的罕见疾病国家政策及其12个罕见疾病英才中心。 The summit, from Nov. 16-18, highlighted India's National Policy for Rare Diseases and its 12 Centers of Excellence for rare diseases. 与会者强调,印度的遗传多样性是了解全球健康和发展有针对性的治疗的关键。 India's genetic diversity was emphasized as key for global health insights and developing targeted treatments. 与会者讨论了孤儿药物的数字化和监管途径,目的是加速发现稀有疾病治疗。 Participants discussed digitization and regulatory pathways for orphan drugs, aiming to accelerate the discovery of rare disease treatments.