印度的稀有疾病预算在三年内从零增加到82卢比,为脊椎肌肉萎缩提供了大量资金。 India's rare diseases budget increased from zero to Rs 82 crore in 3 years, with significant funding for Spinal Muscular Atrophy.
印度的罕见疾病预算在过去三年从零增至82卢比, India's rare diseases budget has grown from zero to Rs 82 crore in the last three years, with a dedicated fund established for treatment. 卫生部正在考虑设立一个侧重于脊椎肌肉萎缩的技术专家组。 The Health Ministry is considering creating a Technical Expert Group focused on Spinal Muscular Atrophy. 为SMA病人提供的资金大幅增加,从2019-20年的0卢比增加到2022-23年的35卢比,再增加到2023-24年的74卢比。 Funding for SMA patients has increased significantly, rising from Rs 0 in 2019-20 to Rs 35 crore in 2022-23, and further to Rs 74 crore in 2023-24. 政府旨在通过土著研究、生产、支持性治疗和公司社会责任资金,改善罕见疾病患者获得负担得起的药物和治疗的机会。 The government aims to improve access to affordable drugs and treatment for patients with rare diseases through indigenous research, production, supportive therapy, and CSR funding.