家庭为超罕见的基因突变建立了慈善机构 Cure DHDDS，第一年筹集了 22 万英镑。 Family establishes charity Cure DHDDS for ultra-rare gene mutation, raising £220k in 1st year.

家庭创立慈善机构Cure DHDDS,以支持患者,并推动对全球仅70人影响的超罕见DHDDS基因突变的研究,导致发育延迟,和神经问题;慈善机构在第一年筹集了220万英,但没有治疗方法. Family founds charity Cure DHDDS to support patients and drive research for ultra-rare DHDDS gene mutation affecting just 70 people globally, causing developmental delays, seizures, and neurological issues; charity raises £220k in 1st year with no treatment available.

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